Tuesday, March 1, 2011

Mostly good! We'll take it.

It was a busy day today and like I said, mostly good. So here we go:

1) The big news first: they redid her echo and her heart squeezing is "not worse and even a tad better." We'll take a tad better any day. Last time it was a "smidge" better. A tad, apparently, is better than a smidge. They are still holding off on the steroids because the surgeon wants her wound to heal more. They are going to do another round of the immunoglobulin treatment next week. So hopefully it continues to get better! I'll have to ask the cardiologists what's better than a "tad" so I can root for that next time.

2) Her energy and eating has been pretty down, something the Cards link to her heart function being poor. So they are encouraged when she eats well and doesn't sleep all day. So today was a good day for that. At her 9am feeding she took the boob exclusively without any supplement in her feeding tube (which is a first!) and her 3pm feeding (which I wasn't at) she took an entire bottle (called PO in the NICU world), which she's also never done before. It's amazing that with her intricate heart issues, it's simple things like eating that the specialists look to to see if she's doing well.

3) She also upgraded to another new bed. I call it her "comically large bed" because I can crawl into it with her if I wanted to. So picture a crib. Now picture it comically large and voila. That is what she's now sleeping in. I'll take pictures tomorrow. Today's picture features her old crib.

4) The only crappy news of the day is that they have to remove her PICC line and put in a new one. The line migrated away from where it should be and they don't really know where it is (turns out x-rays are bad at giving details and they don't want to feed her dye just to find it). So they're removing it just to be safe and putting in another one. It's quite a procedure of inserting a thin line through her vein and into the spot right before her aorta, so I'm pretty sad she has to go through it for the third time. I have to keep reminding myself that she won't remember this when she grows up.

Otherwise things are going well. Molly got in some quality Grandma/Aunt Hannah holding time today. Her favorite pastime is being held by people, so it was win-win for all.

Pic of the day: One of my favorite night nurses, Ruth, came up with this arrangement so she felt all snuggled in at night. Molly likes boundaries and the boppy pillow provides just that.

Molly's crib version 2.0: the version after the sad plank-looking bed
and before the comically large crib (this one, but way bigger).

3 comments:

  1. I am a big fan of her mobile and boppy... and I like her hair! She's very badass.

    Hope the new PICC line goes smoothly, and looking forward to seeing the comically large crib (CLC).

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  2. Aw, her mohawk is cute! She is so cutting edge. :)

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  3. Thank you so much for taking the time to do this blog. I feel way more than a tad better being able to hear about you all and Molly!

    I just checked on some synonyms for tad. How about a "scintilla" or a "skosh"...only more than that?

    Can't wait for the bed picture as well as lots of Molly photos. She is a beauty.

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