The hospital is letting us spend 24 hours with Molly in a "sleep-in" room. This is their version of high-stakes testing... if she feeds well without a feeding tube for this 24 hour block of time (and continues to gain weight) then we are one step closer to graduating from the NICU. In other words, it's our first night with our baby!
Otherwise, this week has primarily been about fighting with the doctors regarding the (un)reality of a strict 3 hour feeding schedule for a breast fed baby with a heart condition. The doctor's were finally convinced (or decided to humor us), thus tonight's slumber party.
Molly has pulled out her own feeding tube twice in two days, clearly indicating that she wants nothing more to do with that nonsense. Combined with sabotaging her PICC and central lines, she is clearly ready to come home. Not to tell tales out of school, but we are hoping to be able to come home next week if all continues to go well. And I have just knocked on all the wood near me.
Molly has a new collection of knit clothing thanks to Rebecca and her lovely visit. Pictures to come soon.
That's great! I really hope she gets her nom nom's the right way. :) I believe she can. Hang in there!
ReplyDeleteYeah! Baby's first sleepover!
ReplyDeleteI'm so happy y'all will get to spend 24 straight hours together. Hope all kinds of snuggles and nursing and peace ensue.
ReplyDeleteYay for the sleepover. And yes, you are right, a strict 3 hour feeding schedule for a breastfed baby is unrealistic. Go with your gut. Hugs to all!
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