Last Friday we made our triumphant return to UVA for some follow-up appointments. It's amazing how the 9 (very long feeling at the time) weeks we were there all of a sudden felt like 3 seconds of time.
So we followed up with hematology about the blood clot in her leg from the first PICC line debacle. We've been giving her Lovanox shots twice a day to prevent it from spreading. I was hoping to convince them to stop the shots, but they said no. Boo! So we have to give her the shots for another month. We go back on May 19 to get an ultrasound on the clot and more blood levels on various things I don't really understand. The bottom line is, May 19 should be it for the shots. Yay.
They had to take blood from her while we were there and it's still just as hard as ever. After a failed attempt on her arm, the nurse told us to tell anyone trying to get blood from Molly to go straight for the head. So... now you know.
After hemo, we then met with cardiology to get her pacer checked. This is pretty much the only time anyone at UVA said all her tests came back "perfect." Woo hoo. Her pacer is functioning great. They know this because she has a little computer inside of her that collects information n her. To read the information off it, they put a huge magnet up next to her chest. Wireless technology at it's best! In fact, once we get over the initial year of monthly pacer checks, we will get to check her pacer over the phone! We just call a number and it can read her stats right there. Weird.
The rest of our time was spent visiting with nurses, doctors, moms and others that we knew. It was an amazing feeling to be able to be with everyone knowing that we got to go home at the end of the day.
On a related note, Molly is still happy at home. She loves baths, being in her car seat and smiling. She hates her shots, being left alone and gas. She also has been noticing lately that there are two similarly-sized fuzzy things living among us. Oh and also, somehow, every song now has "Molly" somewhere in the lyrics.
Follow up cardio appt next week for another echo to check on the heart function.
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